Update on Me: Chronic Illness Awareness (while we are at it!)

It has been beyond challenging to write lately. The fog that these illnesses leave me in is debilitating most times, no matter how much or little pain I'm in. But I've promised myself that I would keep writing or at least keep trying. So here I am.

The diagnoses keep coming and so do the pills. I take so many pills, that are both prescription and supplements, I never would've thought this would be me. The picture is just my morning doses.

Good news is I'm responding well to certain meds that help stabilize me enough to keep me out of danger. The bad news, I'm still very "sick." I still have my good days and bad days and very bad days. I will have bouts of days (sometimes a couple weeks) of good days that bring me under the delusion that I'm better. But then I flare again, and it's a reality check of how sick I still am. My good days consist of low pain, low-moderate fatigue, and 20%+ brain fog. My bad days consist of (having at least a few or all of these): high pain, migraines, chest pain, burning arms and/or legs, stiffness, back/neck pain, feet pain, ankle (from my past sprains) pain, ringing ears (6 months going strong), nausea, loss of appetite, dizziness/vertigo, major sensitivity to light and sound, and lots more brain fog.

The depression and anxiety that comes with chronic illness is just as debilitating sometimes. Being stuck in constant pain, fatigue, and fog can leave you feeling very alone and frightened. Watching everyone else doing things around you while you sit, makes you feel like a burden. The never ending question of, "Will this ever lift?" ransacks your thoughts like a dog gnawing at it's bone. It's depressing. Then comes the anxiety of being in situations that bring you more pain, and/or embarrassments and the judgments that come. Sometimes, it's pretty obvious I'm in pain. You can see it in my swollen pale face. But most times, my challenges are invisible to the world. I've been forced to give up so much. So many of my outlets for release have been taken from me, most the time.

I finally gave in to seeing a therapist. I was noticing that not only did my body flare because of the weather, or I overdid it, or I ate something, or it's my time of the month, or my body just felt like doing whatever the hell it wanted to and that day it decided to set my arms on fire..... Sometimes, my emotional instability will cause a flare. When I was making that separation, I realized that not only do I need to work on my body physically, but emotionally/mentally as well. The way I cope with stress is so unhealthy due to my tears and shutdowns ultimately leading to my body shutting down with pain and fatigue. So.... to the therapist I go!

Me with Merlin (my newly named icepack). 

I've also been doing a good job at failing at my new diet plan. The struggle is real! Especially when you are ill and all your comfort foods are "no no's."

So this is just a small glimpse into life with chronic illness. There are so many different kinds of chronic illnesses out there and I do count my blessings when it comes to things I can still do, that others can't.

If you are suffering with chronic illness, I am so deeply sorry. Know that you are not alone and find support groups whether in person, or there's some great ones online. Keep pushing doctors to find out your diagnosis and proper treatments. And love yourself enough to rest as you are able.

If you know someone who is suffering with chronic illness, believe them. Learn about their diagnosis' (the most romantic thing you could do) and how you can help them practically. Buy them fuzzy pajamas, slippers and socks, heating pads, ice packs, movies and don't forget the sweets! (that is, according to their diet restrictions) Give their caretakers a break. Love on them by appreciating that every day they live out their awful disease. Your support means everything to us.