Dysphagia Improved! :)

I bear good news today... It's such a relief to be able to give positive news on an improvement that Tesh has made.

First of all, the PA at the NS's office gave her a once over, and was pleased to say she sounds and looks great for surgery so far. We'll do blood work and all that the day before surgery. She must also have good levels with that as well.

Her swallow study went great. The Speech Pathologist said that he did NOT see any aspirating during the thicker fluids... YAY!!!! He said there was a little penetration still (meaning that it'll get a little caught in there, but then gets pushed out or coughed out) (if you think about it, whenever we drink and it goes down the "wrong tube"... it's kinda like that) He also explained that normally people swallow in one step, food is put in the mouth and with one act it's swallowed down into the esophagus. With her, she does it in 2 steps. food is put in the mouth, it travels down into her throat, sits for a split second, then is pushed down. He said that that looked pretty typical for a baby that doesn't have the experience of swallowing food. So it's going to just take some practice. He gave instructions for small bits of thin pureed foods, no scooped bits, just dip the spoon in the food. He said do this until she starts getting used to it and that I'd be able to tell when she's ready for bigger bits. After asking how long it might take her to get used to eating normal bits.. he answered, a couple weeks maybe. He sounded very optimistic about her case of dysphagia and said we wouldn't need to repeat the swallow study unless she's having problems again. He expects improvement from here on as we work with her slowly to learn how to eat food and has given the official permission to EAT!

We are going to wait until after surgery to start her on food again, as the PA suggested, to make sure that she doesn't accidentally aspirate something just before surgery, otherwise surgery won't happen. And we don't want to go there.

Every it looking up, and we are very thankful to our Merciful God for these blessings, and we are thankful to all of you for being so faithful in prayer over Teshura. Enjoy the pictures of our day today!

The car ride there!

Waiting to see the PA in the neurosurgeons office. She loves playing with paper.

On our way to the next appt. for the swallow study!

getting ready for the swallow study. She's strapped in and loved to play with them. This is her yummy looking barium... I believe they said raspberry flavored?? yuck! It don't matter what you do with it......

I'm not sure if she was in love with him...... or in love with his hair.... hmmmmm
either way, she's attracted to the speech pathologist. lol....
other pic- the baby disappeared! you can maybe see her little foot?

This is interesting... this is what we saw on screen as the barium goes down. You see the dark where her throat is? (she's facing left) That is where she'd hold it for a second and then let it go. so interesting....
(this one's for you Aunt Emily) *she's studying to be a speech pathologist:)

not very happy that they took her barium away... lol... she was hungry. She ate a whole bottle after this.

Third Times a Charm?

Ok, the nurse from the pulm.'s office called Monday and informed me that a second bacteria showed up, "strep pneumo-" (strep in the lungs) again... not serious... but needs to be treated. So she's on a second antibiotic for another 3 weeks. After that, I thought, surely the NS is going to look at this case and say "Heck NO!" I thought it was hopeless... at this point.. a part of me felt like this surgery was never going to happen.

Yesterday, I talked with my Ped. and she gave me hope that if anesth. will do it, then surely she'll be fine. She explained to me that these bacteria's that they are finding are so common in kids and that everything will be fine. I also called the PA at the NS's office to give her the "whole" case for and against Teshura having her surgery so he has all the facts.. including my last amo of... she's had no fever... and anesth. said they'd do it. 

Today, the PA calls me back to inform me that she had talked with Dr. M (ns) and he said to delay surgery once more to give her more time on antibiotics. The date has officially been changed to July 2nd.

I was actually ok with hearing this cause this means that she will be more protected because of the longer med. intake, if they were to reschedule you couldn't ask for a better date (4 days later), and with all her known facts of having these infections and on antibiotics and her dysphagia cough... they are going to do surgery!! Praise God!

This all still gives us a little over a week to prepare, which is good time to get things done. We'll be at the hospital during 4th of July, but at this rate, I don't care. We'll be home in time for my birthday... and if not (which I highly doubt) I still won't care. I'll be glad to get this over with, and that will be the best birthday gift, to have my daughter over this huge hump of surgery and sickness.

My heart is lighter again... now to the next thing for now... still taking today... keep her health and safety in your prayers.

Not Even Sure What to Pray For...

I know some of you are anxious about knowing what happened at the bronchial scope for Tesh. I'm thankful that I have so many people that care about our family to tune into what's going on, and that pray for us often.

On June 15th, Tesh had a bronchial scope done by Dr. W. (pulmonologist) He was looking for any abnormalities of the inner anatomy, and to take cultures from inside her lungs, searching for infection and/or inflammation. The question here is, "What is causing the crinkling and the coughing, that has so long been affecting her from 2 months old?" (mind you, she has already been diagnosed with dysphagia, that would cause a natural reaction to cough) But the doc. wants to be thorough, so thorough we will be.

Josh's grandparents took Tesh and I to Iowa City that day. I was nervous about the findings. Didn't know what was around the corner. She was to be sedated for this procedure, so that alone made me nervous. The nurses were very nice, getting us prepared. We waited a little while in the recovery room, before they took her to the room they were to do the scope. Ma and Pa left to get something to eat real quick, so that left just me and my little girl. It was kind of nice having that time, with no nurses... just me and her at play.

The nurse came in, it was time to bring her to the "special" room. When I got in there, Dr. W talked with me about why and how they are doing this scope, nothing new in that conversation. They had also talked about giving her a different sedative cause the one they normally use has soy in it..... interesting... They were going to have me stay until she was asleep and then have me exit the room. I'm not sure I was prepared to be in there when she fell asleep cause I was terrified with what I was about to see. (bad memories of Sarah) They had me lay her on "the" bed. She was fussing, of course, by this time she was VERY hungry and probably tired... she wanted mommy. They gave her drugs through the IV they had put in, and after fussing for a bit, as I stroked her cheek with my fingers, she fell asleep. I instantly thought, "oh, she screamed herself sleep" but then realized (duh) she is sedated. It wasn't as scary as I thought it would be, it literally looked like she just fell asleep, no scary limpness about it, just asleep. They said, "ok.. Mommy can give her kisses good-bye, and we'll see you later."
I bent down right away to kiss her good-bye. Already the tears started coming to my eyes.... what if this was the last time I kiss her alive. Thoughts of my last kisses on Sarah ran through my head. The tears started coming. I had warned the nurse there that I was a SIDS parent and that this was hard for me. Like a big girl, I gussied up some strength to get out of the room and leave her with the professionals. As I shut the door behind me, I started crying. I had to meet Ma and Pa in the waiting room, so as I walked passed everyone there, they were all looking at me, some of them wondering what happened, some of them with calm understanding expressions, as if they know the heart ache feeling.... after all, we WERE in a Pediatric Specialty Clinic in Iowa City. Ma and Pa came and sat beside me, hugging me and, yes, forced me to get something to eat. The walk was good, that way I could get out of my panic state and back into reality that she was just having a scope done and that everything would be alright. I only came back with a chai latte... Kailan can't eat like that during things like this.

It wasn't long at all by the time they told us we could come back to her. I got up quickly, so excited and glad that I could be with her and that it was over. In the recovery room lay my little baby girl, still sleeping with rosy cheeks and everything. I was pleased. Everything was looking good. Dr. W. came to tell us that he didn't find any abnormalities in her inner anatomy, which was great news. The cultures were going to take a few days to come back. She did very well with anesthesia, and the nurse wanted us to wait until she's awake and alert enough to eat. I watched her lay there, breathing normally, looking so comfortable.

After awhile, she opened her eyes, (and she always has been one that wakes quickly) saw me, and wanted me to hold her. I knew she had to be starving and the nurse let me at least hold her after taking all her monitors off. She was a little agitated but was glad to be in my arms. There was a point where she was truly getting hungry and the nurse agreed to let us give her diluted apple juice to start her off. While the nurse was getting the juice, Tesh was starting to get VERY hungry and still had the tired drugged feeling. I pulled out my last tool of comfort that I knew..... our song. "Let My Life Song Sing To You" by Casting Crowns. I started in, ... "I once was lost.... but now I'm found.... " as I kept singing she stopped crying, concentrating on my mouth, listening to my voice. Ma saw the moment to take a picture of what was happening. It was a beautiful moment between me, my daughter, and our Merciful Father. What a good idea He had, creating babies to be so tuned in to their mother's voice. :)

After that, she chugged 5 oz. of juice she has never had in her life, and we were off and free to go.

Days later I called seeking results from those cultures. No inflammation found, but there was a bacterial infection found called HiB (and yes, she had her vaccine for this) It is not serious, and in fact very mild, but can range to serious if not treated and it spreads. The nurse said it was hard to tell if she had been harboring this this whole time, or if she simply got it from the scope alone. The Dr. ordered a 3 week course of antibiotics for her infection. I called the neurosurgeon's office, (he was out of town) so I talked with the PA. She said that he may want to reschedule surgery. I cried at that point. But it was not her call so we have to wait for Dr. M to come back. Then I talked with anesthesia to see what they thought about it. They gave me more hope. They said that as long as she's not symptomatic, even though she's on antibiotics, they would do it.

So now the heart wrenching question is... surgery or no surgery right now. If she does not have surgery then we continue the worry of her head's condition and possibly the health issues that are related to it. OR  she has the surgery but MAY be more at risk for infection. Which I am left to guessing what might happen there. And I'm not stupid. Either way there are risks. I cried my eyes out all that night, in anguish. I do not have a favored side. Sometimes I feel like this surgery is never going to happen, I feel like she always going to have these unresolved issues. People have already told me that "It's in God's perfect timing.. that He knows when she'll have surgery... He knows when this will happen." I know all this, and they know I know this. My hang up is that even though I know He is in control, THAT very thing does NOT promise her life on this earth.

I want her to live, I want her live with quality. I want her to stay here with us. That is my prayer. That is my desire for her. I want her to grow up into a beautiful woman, being able to live to tell the tale of all this. I have no promise of these things. This is where my tears are coming from. I know too well that sometimes, it is in His plan to even take babies back and I don't want to do it again. It still hurts and will always hurt that I can't squeeze and kiss on Sarah. And I look at Teshura, and can't imagine my life without her. I am weak...
I have moments of strength where I don't dwell on this, but when you dissect the situation, this is what you'll find. I'm holding my breath, waiting for answers as this next week unfolds. I have NO idea what's going to happen. It's not my decision.

For now... I must only think on today... I have a sick husband that needs me, and 3 living children that need their mommy's attention.

Hold Tesh in prayer for safety with whatever happens. And for my peace with the decision made.

Praises: Tesh finally @ 8 months old rolled onto her left side, enabling her to roll around completely, she's loving it. She got her first tooth in, and she's sitting up now. These milestones are wonderful for Tesh to finally pass through because of her failure to thrive (from before) and her cranio. She is bound to be a little behind, but not far... :)

Solemn Morning

I woke up this morning to my sweet little girl, beside me in her crib babbling. I get up to feed her and check my email. The first thing I read is Ben's progress written by his dad at 1 in the morning.http://www.caringbridge.org/visit/benjaminricketts This little boy, almost 2 years old, was found not breathing with a cord around his neck. His dad did CPR until the paramedics came, and he was air lifted to Iowa City. This was several days ago. I've been keeping up on him, not knowing this family, found them through facebook. This story has just broken my heart. I'm finding myself looking over my house, finding any cords that the kids could get into. I just couldn't imagine watching your little 2 year old, lay there on a hospital bed, in an induced coma, waiting and praying most desperately for his brain to heal. There has been little progress, but the prayers keep coming. There are thousands (and I'm NOT exaggerating) of people on facebook that have vowed to pray for little Ben. Every time I read their postings I almost feel like I'm in church... the true meaning of it, anyway. Believers coming together. So many people tuning in, watching and waiting, and praying for something to happen. In an attempt to comfort them in their weary times as I read this dad's weary letter, asking us to pray for their strength, I thought of the song that I love to hear when I feel most desperate. "If You want me to" by Ginny Owens.
This woman is blind, plays her own piano, and sings with the most angelic voice you've ever heard. As I listened to it this morning before I sent the link to them, memories of riding in the car listening to it, grieving Dad, came to me. Then Sarah brushed into my mind and all the lost feelings of losing yet another dream of a future with her. Then my sweet Teshura, the baby I'm privileged to hold in my arms this very moment and all the stuff that's going on with her, crossed my mind and I thought. "I can do this. This is why I'm doing this." At the end of the song, Ginny added a little line that I've never heard before, and it created tears streaming down my face..... I have no other words for it. I need you to just listen to the song. Do this favor for me and listen to these encouraging words and breathe.

http://www.youtube.com/watch?v=yMKp4g_ZrGk 

cry and enjoy!

update on Tesh:  Dr. M does not believe there is any sign of a connection between her head and the dysphagia. She will have another swallow study on June 25th during her pre-op work up and is to have her cranial surgery on June 28th. She will be second in line again. This gives us 5 weeks to prepare, which I am grateful for.

A Blessed Day! We stayed to serve, not to be served.

We are finally home and we are exhausted in every way. .. physically, mentally, emotionally. Today turned out to be nothing like we planned it to be. We first came to Iowa City, preparing ourselves for surgery. That did not happen. However because the surgery was postponed, we had a relaxing morning, waking up bright and early at 6 am to our little angel. :) I remembered Abby's surgery was to start at 6, so I said a prayer for her. I couldn't help but notice Tesh's high spirit that morning, babbling her little sounds of "da da da da da...". We ate our breakfast, watched a little of actual TV (which we do not have the luxury of at home) and got packed and ready to check out of the hotel.

We decided we still wanted to sit a little with Tami and David, as they anxiously await the confirmation that Abby is safe and done with surgery. I was still only left with my imagination of their feelings during this process. We reached the hospital, following the instructions Tami gave us to get to the waiting room. Instantly we saw David passing through the door and he spotted us. The man that, last night, after being asked how he was doing, would say, "alright. it has to be done." with a shield up, now.... had tears in his eyes and his face full of anxiety. He admitted he was anxious and explained that Tami has been done crying for a while. That made my heart break for them. They told us that the nurses said that they'd call when they started the surgery... . but there was no call. So we all sat and were left there to wonder.....   'what was happening to their Abby?'
We had some good conversation for a while, then they finally got a call. Abby was doing great and they were almost done. Tami and David sat there, from start to finish for about 6 hours. phew. Tami was relieved, but David was still holding his breath until she came out of anesthesia. They were finally called in, and that's when we parted. We were happy to see them get through this surgery, and unfortunately, it was time to leave and we didn't get a chance to see Abby.
As we were in the elevator, I announced that I was going to see the Flinn's one more time before we left. Josh, understandably, wanted to get home, but my thought process was, "it's not like we are in Iowa City everyday. Since we're here, we might as well visit."
We get up to their floor of the PICU where little Miles is, and we saw this couple sitting on one of the couch's just outside of the PICU.  Josh and sleeping Tesh camped at the other couch, cause children aren't aloud in the PICU. I walked off, telling Josh I won't be long. The wife, of the couple, got up really fast, bawling. I could hear her as I walked off into the hallway as she cried, "I"m sorry, I can't do this! I have to go back into the room!" pushing through her husband. I was about a third of the way into the hall and I could hear the echos of her crying getting closer to me. I was thinking, 'ok, she obviously has a child in here that is really sick.' I wondered what was going on.. I made up my mind, very quickly, cause time was of the essence, and stopped walking. I turned around and asked the stupid introductory question, "Are you ok?" knowing full well, she was not. She brushed passed me with her hand up to silence me as she said through her tears, "My baby just died.."     Before I let her get any further away, I said as quick as I could, " I know what you're going through. My baby died of SIDS."

Time stopped for a moment, and she turned towards me and curiously asked, "Really?"  I finally saw her face as she let loose all her tears. I instantly wrapped my arms around her, and embraced this crying stranger.
The looks on their faces were all too familiar. That deep sheer panic, as you are thinking "what the heck just happened." It felt like a dream, better yet, a nightmare. No one ever can prepare to lose their baby, and when it happens, you find yourself lost in a pool of your own tears, where there is no time, but also no air.

I put my mouth to her ear and said, "You just breathe, that is all you are expected to do.... take one breath at a time and breathe." I glanced up, catching her husband's glazed over eyes watching us, for he followed her and was standing behind her. He lipped the words, "thank you" and I smiled and nodded back. I was crying a little with her, as feelings came back to me of my present grief.  I let her go, and told her to get in there and breathe. She walked to her room, down a different hallway, and the husband, following her, once again lipped the words, "thank you". I said " no problem" .... then I turned towards my original destination and started walking again.

Tears filled my eyes as I tried to compose myself but they kept coming. They started down my face as I got deeper into the hallway towards Amber.( Miles' mom) Amber just so happened to be standing outside her room with a bucket in her arms full of bottles. By the time I got to her I was started crying even more, I said to her, "sorry, I just came to say hi, but I ran into this woman that just lost her baby." As I covered my face with my hands, I found myself shaking, not able to breathe as well, overwhelmed with my memories of losing Sarah. Amber instantly embraced me as I cried, understanding what feelings that encounter must have brought back. I explained to her what happened as I tried to calm down, but still shaking. Then I asked how Miles was doing. Although Miles' surgery part of things was going well, he was not responding to the sedation very well that he needed to be under for recovery. The prayer is, is that he can get his breathing tube out tomorrow, and that the sedation period can be lifted. As I listened to her, tears remained in my eyes as I was taking all that she was saying in. When Miles was first born, he had so many issues, that they almost lost him. She has been tormented by close shaves with Miles. Her husband Tommy came out to talk a while. It was so nice being able to talk to them and see them one last time before we went back home.
As Amber and I walked back towards Josh, I ran into the grieving dad again. He again, said thank you to me and I said back at him, "You need to breathe too." He stopped and was willing to speak with me a little. I asked what happened. I had a hard time understanding his shaken voice, but what I did hear was that the baby was 2 or 3 weeks old and that he had a heart problem, and they helplessly watched him die. He was explaining that he was so enraged that he was throwing chairs and looking for other things to throw and that people had to stay away from him. I told him that Josh almost ran away, but was stopped by his father cause we needed him here to go to the hospital. After a bit more conversation he went back to his room and then I  left Amber, and came to Josh sitting there waiting, as patiently as he could. (it had been an hour:) 
Poor Josh was guilt stricken this whole time, having the gut feeling that when we came in, that woman set off. In hindsight, we realized that Tesh, another baby, was probably what set her off, and Josh had that gut feeling about it too when it happened. I cried once more as I explained what happened. With his somber face, he said," When our schedules are disrupted, we need to find the reason why."

We walked out of that building completely exhausted in every way, but in a good way. It was like we had been working on something so hard and finally finished our part, and we able to look back at the masterpiece that was being made. Not by our design, of course.

None of this would've had happened like this if we'd been in surgery, waiting in our own misery, being served by everyone else. (there is a time to be served, but this was not that time) We chose to make this day into what it needed to be. Obviously, there was a reason beyond our comprehension, beyond our sight, a reason why we were here still. I was at peace with the fact that the surgery was postponed. (finally...... and it only took a day:)

Thank you Lord, for blessing this day and using us for Your glory. Prayers for Abby and Miles' healing and rest.

You know that feeling of contemplating within yourself to speak or not to speak to someone. Don't fight it, just do it in the name of Love. ..... for God is Love. You have the free will to embrace these moments, or you can let them pass by......  

bondservant

The Ultimate Protector at Work

I don't even know where to begin... Let's go back a little.

The night before, I had to say good bye to my 2 year old, Eve. (she's getting sick) That was so hard, I cried my eyes out.Then we were up late packing the last of our things, making sure we weren't forgetting anything. Then up early, cause I couldn't sleep and woke with a headache. I said good bye to another child of mine, 5 year old Isaiah... cried some more, but he did make it easier that he was so ready to say good bye to me so he could play with his cousins. :)
When I woke with my headache, I thought surely, this is a bad start to a bad finish.

We drove through a pretty good storm the whole way there. We brought one bottle with us, cause that's all we use, (yes, we just keep washing it and washing it. we were too lazy to go get another nipple that will work with her. ) BUT it broke through, so Josh had to drop me off to fend for myself at these scary neuro- appts. until he came back to me with a new bottle and nipple. I got lost in the hospital and was late to my appt. (which I'm learning most parents are late)
In the midst of my rough spots, there waiting to meet me just outside of the clinic was Tami and her family. Tami, is another mom that I met through the support site, that has a baby girl with left coronal synostosis. Little Abby was to have surgery the morning of Tesh's surgery. Right away, Tami greeted me with a hug. She is so sweet. Her and her husband are very nice, and their little Abby is the sweetest. She was asleep at the time. They sat with me while I waited to be called into the room.

When they called Tesh's name, I went into the room very apprehensive about what they were going to think about this lagging cough that she has. She is normally chronically coughing, but she was also just sick with a viral cold that she was at the tale end of. I didn't know what was going to be decided. The PA was concerned. In protocol, I was sent to the labs. I lost her med. bracelet on the way to the labs, and had to have a new one made. I didn't need that... All her labs drew normal. Anesthesia was concerned, but sent us to our "swallow study" appt. before they came to a final decision.
Our swallow study was interesting. The Speech Pathologist came to us and said, "This is very unusual" (of course, another Tesh move) He went on..." She has dysphagia, which is a fancy term for 'difficulty swallowing'. Usually people that have this have difficulty swallowing the thinner fluid and so we'd thicken it up to help them swallow it appropriately. In her case, she has difficulty swallowing the thicker barium, as opposed to the thinner." He instructed us to stop the baby food and they'll see us in 6 weeks, and see her progress, if any. I had started pureed fruits with her 2 weeks ago, and noticed she gagged and winced with her swallowing. I felt bad I had pushed her through all the gagging, just to be instructed to stop for her health sake. I would've never known.
It seemed all these things were happening that were hindering all this to work. I asked God, well... pleaded with God to give us an answer once and for all for surgery day. Are we to stay or go. 
We came back to anesth. just for them to break the news to us. He explained that the fact that she has a chronic cough and the irritated airway (with the mild asthma) that that's already putting some risk on the plate. Then the kicker was her fever last week, although small, they thought it best in light of the "whole" circumstance that it was "safer" to do the surgery later.
When will this "later" be? I'm not sure. could be few weeks or so. They said they'd contact me, cause she still needs this surgery to be done to allow her brain to grow normally.
Did I cry? yes. Am I incredibly disappointed? yes. Am I frustrated that they didn't tell me this information about the risks that they were looking at? (YESTERDAY) yes.

Do I love my daughter and will do anything for her? YES... and that is the main reason I can walk away from this making the most from this moment that God has given us.

Today I do not have to worry and prepare for surgery, BUT little Abby is here, and little Miles is here(flinnfiles.blogspot.com) and we are present.
We had a great dinner with Tami and her husband David last night. We talked almost the whole night. We got pictures of the girls together before their surgeries. I was able to visit the Flinnes and speak with them.

Josh and I had a good night's rest, NOT thinking about surgery. And Tesh has a smile on her face this morning that you can't miss :) I look at her and have a peace that she is being protected for reasons of the unknown. And I must trust that God is the Ultimate Protector and that I am merely her mother, the vessel being used by the Protector.

 (this picture is from her dedication on May 2nd, Pastor Todd led us in prayer over Teshura.)

1 More Week, the Countdown Begins!!

well..... I'm doing much better in the scatter brained- department. I'm getting organized and I've got my lists, and I'm getting ready to go.

Only there's one problem. .... we're sick...  That's not what's supposed to happen. I started isolating the house to keep germs out, and when I started doing that, we all got sick anyway. Mainly colds and allergies. Isaiah has been sick, Eve is doing decent. Josh is suffering from allergies, major. I am hacking my lungs out today. Tesh is barking and congested, and had a fever yesterday. (of course, she's the only one to run a fever, but at least that means her body is fighting it, so that's good)

I've come to the conclusion that I'm being tested. The surgery will happen when it's supposed to happen. I can worry all I want, but it will not change God's hand. We are coming down to the wire, of a major surgery, and I'm sure, God is not going to want to waste this. He is going to stretch us even farther to keep growing us into what He wants us to be, into what He's counting on us to be. ... immovable... steadfast... faithful...... content.....

I should've known we'd all get sick a week before. So now, what am I gonna do about it? I'm going to fight. I'm going to work towards getting everyone healthy again cause that's what I do as a mother, but I will do it knowing that God will get us there. I must learn to be content once we reach that borderline of surgery or no surgery, and trust that whatever happens is God's will.

To be honest, I am pleading with God that this happens May 13th, but I must start preparing myself for both.

I've made the choice that I will not lose hope in May 13th being our surgery date, so what that means for me is I must "prepare my field." I must keep preparing and organizing and nurse my babies back to health. I will not let this sickness, these colds and allergies, destroy my hope. Of course, I can not do it alone. I need all of your help too.
To pray.... pray for the health of our family and for the safety of our family. In order for Teshura to have this surgery she must not have a temp. and she must be well or getting significantly better. Her blood levels MUST come back normal, if elevated at all, the surgery will be rescheduled. Dr. M 's next available isn't until July. He did not want to wait that long, so he's "squeezing us in"... I don't know what the next "squeezing us in" is going to look like. And my favorite part... the fellowship. 2 other families are going to be there, having surgeries on their babies, in the same week, one on the same day. We would love to be a part of that fellowship.

Thank you for any and all prayers. I need my prayer warriors!
May God show His mercy and grace to us, but more over, May His will be done.

quick update note:  Tesh has been diagnosed with (mild) asthma, and there will be a swallow study done the afternoon after the pre-op work up on May 12th.